IOM Panel Identifies 12 Data Collection Systems for Monitoring HIV Care

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On Thursday, an expert committee convened by the Institute of Medicine released a report identifying core indicators and data collection systems that officials could use to monitor the country's progress in addressing HIV, Modern Healthcare reports (Barr, Modern Healthcare, 3/18).

Core Indicators

The 259-page report stated that core indicators for quality HIV care include:

  • Certain measures of clinical HIV care;
  • Access to treatment for substance misuse and mental health disorders; and
  • Access to supportive services.

Data Collection Systems

To determine how the White House's HIV strategy and the federal health reform law will affect HIV care in the U.S., the committee recommended that officials gather information from 12 data collection systems, including:

  • The Department of Veteran Affairs' clinical case registry;
  • Medicare and Medicaid claims systems; and
  • CDC's Medical Monitoring Project.

According to the report, such data collection systems could help health officials track existing barriers to HIV care and access to supportive services (Kulkarni, "Capsules," Kaiser Health News, 3/15).

The committee also recommended that HHS issue guidance on the circumstances under which it could be permissible to share certain types of data on patients with HIV (Modern Healthcare, 3/18).


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